Hamilton Heights High School Sponsors Service Project for Families of SMA-OKI Chapter

Honor Society Hosts Fundraising and Awareness Event in Honor of Alexander Davis
On September 6th, 2011, the Honor Society at Hamilton Heights High School in Arcadia, Indiana put on a fundraising and awareness event for Families of SMA.  Alexander Davis, SMA Type II, visited the event for a picture session with the Honor Society officers.  Everyone [...]

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Families of SMA- Pennsylvania Chapter Participates in Friends Helping Friends Day at Boscov’s Department Store

Raising Funds and Awareness in Honor of Eden Cheslock
Boscov’s Department Store hosted the popular Friends Helping Friends, a special day filled with fun and fund-raising, to benefit area non-profit organizations on Tuesday, October 4, 2011. In October 2010, Friends Helping Friends day was a tremendous success, raising over $500,000 for service organizations in communities [...]

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Race 4 Grace Raises Over $3,400 for Families of SMA

Cycling to Find a Treatment and a Cure for SMA in Honor of Grace Nelson
This July, the 5th Annual Race 4 Grace was held in conjunction with RAGBRAI (The Register’s Annual Great Bike Ride Across Iowa).  The Race 4 Grace Team for RAGBRAI has been riding together since 2007.  Team members include family, friends, relatives [...]

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Bella’s Benefit for SMA Hosted by Sliter Family to Raise Money and Awareness for Families of SMA

Comedy Night and Quilt Raffle Held in Honor of Isabella Sliter
Bella’s Benefit for SMA was a huge success. Thanks to everyone who participated, whether it was purchasing raffle tickets for the beautiful quilt, or coming to the comedy event held at The Gold Room. We were able to raise just over $1,700 and are [...]

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Families of SMA- Minnesota Chapter Teams Up with Local Sam’s Club to Host Cookout Fundraiser

Community Joins Together to Raise Money and Awareness for FSMA
On August 27th and 28th, 2011, the Minnesota Chapter held a cookout fundraiser at the Sam’s Club in Fridley, Minnesota.  The Chapter set up a tent, table and a grill outside of the store and sold hot dogs, brats and hamburgers with all proceeds going [...]

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Families of SMA- Greater New York Chapter Hosts SMA Awareness Day with the New York Yankees

Chapter Members Spread SMA Awareness While Enjoying a Day at the Ballpark
On September 3rd, 2011, the Greater New York Chapter of Families of SMA hosted SMA Awareness Day with the New York Yankees.  Thanks to the support of our chapter families, we had a great turn out for what proved to be an exciting game [...]

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Families of SMA- Greater New York Chapter Hosts 7th Annual Walk-n-Roll to Cure SMA

$74,000 Raised for FSMA Thanks to the Support of Family and Friends
The Greater New York Chapter held its 7th Annual Walk-n-Roll to Cure SMA on September 17th, 2011 in Long Beach, New York. This year’s Walk-n- Roll was in memory of Keira Sweeney and her parents, Jacqueline and Mike, made a beautiful speech in her [...]

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1st Annual 18 For Emerson Charity Golf Tournament Held for Families of SMA

Family and Friends Come Together to Raise Awareness and Funds in Honor of Emerson Chambers
The 1st Annual 18 for Emerson Charity Golf Tournament was held on August 29th, 2011 in Prior Lake, Minnesota to raise money for Families of SMA in their efforts to find a treatment and a cure for Spinal Muscular Atrophy.  We had 74 [...]

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Families of SMA- Arizona Chapter Hosts the 15th Annual KDK SMAsh SMA Golf Classic

Family and Friends Raise Over $14,000 to Help Find a Treatment and Cure for SMA
On Friday, May 6, 2011, the AZ Chapter held the 15th Annual KDK SMAsh SMA Golf Classic.  It was a wonderful day and we had a huge turnout of golfers for the tournament.  The AZ Chapter has been holding this tournament [...]

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13th Annual Wannabe Charity Golf Tournament Held for Families of SMA

Family and Friends Reunite to Honor Skylar Bahrenburg
The annual reunion of the Wannabe Charity Golf Tournament was held in Lake Tahoe this year, from August 4th-6th.  The event always begins with an “Opening Ceremony” and ends on the last day with “Closing” which hosts a variety of prizes, awards, announcements of winners, and pictures of [...]

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