Audra and Alan Butler donate blankets for Families of SMA Type 1 Care Packages
Andy Butler was diagnosed with Spinal Muscular Atrophy Type I in March 2009, when he was nine weeks old. After several hospitalizations and a tremendous fight, Andy lost his battle with the disease on June 4, 2009, earning his angel’s wings just [...]
Spreading the Warmth with Andy’s Army in Support of Families of SMA
12th Annual Wannabe Charity Golf Tournament held for Families of SMA
Wannabe Tournament Raises over $2,300
The Wannabe Charity Golf Tournament held its 12th consecutive annual tournament in July of 2010. This year it was held at Sunriver, Oregon. The tournament began its charity component in 2004, after one of its player’s children, Skylar Bahrenburg, was diagnosed with SMA. This year the tournament raised over $2,300, and to date they [...]
Families of SMA Congratulates the Gaynor Family of Sophia’s Cure on their Amazing Fundraising Success
Sophia’s Cure Surpasses $200,000 Goal
Families of SMA would like to thank Sophia’s Cure and Vincent & Catherine Gaynor of Wantagh, New York for all their hard work and dedication to raising a remarkable amount of money and awareness for SMA! Shortly after they found out their daughter Sophia has Spinal Muscular Atrophy (SMA Type I) [...]
Families of SMA – OKI Chapter Hosts 7th Annual Walk-n-Roll in Support of SMA Research
Rain or shine, the participants of this year’s annual OKI Walk-n-Roll were steadfast in their support of SMA
The 7th Annual Walk-n-Roll took place May 1, 2010 at the Cintas Center, Xavier University. Although it rained and was held inside this year it did not dampen the spirits of the many walkers and volunteers who came [...]
Record Attendence at 3rd Annual Cure SMA: Run, Walk-n-Roll in honor of Seth Gilley
Over 400 people come together to raise funds and work towards a cure
The 3rd Annual Cure SMA: Run, Walk-N-Roll was a huge success! The fundraising event was held on May 8, 2010 in Stephenville, Texas in honor of Seth Gilley to benefit Families of SMA. The event was kicked off with a two mile fun [...]
6th Annual Families of SMA – Greater NY Chapter Held Walk-n-Roll in Support of SMA Research
All participants shared in remembering Max Rubenstein and all of those affected by SMA at this year’s Walk-n-Roll in New York
The Greater New York Chapter of Families of SMA held their 6th Annual Walk N Roll on June 5, 2010. This year’s Walk N Roll honored the memory of Max Rubenstein who lost his battle [...]
Families of SMA – Pennsylvania Chapter Hosts Local Walk-n-Roll Raising over $90,000 in Support of SMA
Families and friends from all over came together in support of finding a treatment and a cure for Spinal Muscular Atrophy
On May 16, 2010, the Families of SMA – Pennsylvania Chapter hosted its 7th Annual Walk-n-Roll to Cure SMA! Over 700 people joined our effort to cure this horrendous disease while enjoying games, jugglers, raffles, [...]
Potter Family and the Camden Riversharks Join Forces in Support of FSMA
Baseball, good food and great weather helped the Potter Family host yet another successful event for Families of SMA
The Potter Family did a fundraiser with the Camden Riversharks in Camden, NJ. For every ticket they sold, Families of Spinal Muscular Atrophy would get back $5. This event was held on Sunday, June 6th. Everyone had a [...]
First Fundraiser a Major Success, Raising Just Under $3,000 for FSMA
Danita Chisholm’s Raffle Fundraiser Goes Above and Beyond Expectations
In April, Danita Chisholm held her first fundraiser to help fight for the cure to SMA. She held a raffle called Kure4Kalei, and successfully raised $2,780! Her daughter Kalei has SMA Type 1.
Wanting to start on a smaller scale with the fundraiser, Danita made fliers with Kalei’s picture (shown [...]
Medals Awarded to Those Affected by SMA at the 3rd Annual Families of SMA – Illinois Chapter Walk-n-Roll
Families and Friends Enjoyed a Day of Exercise and Fundraising for SMA Research
On Saturday, June 12th, the Illinois Chapter of FSMA had our 3rd Annual Walk-n-Roll. The turn-out was amazing, with 15 SMA families attending the event with over 200 people registered to walk. We had music, magic and a face painter to entertain the [...]
