Celebrating Lily’s Life and Raising Money for SMA Research This past fall we held our 6th Annual Lily Kennedy Memorial Golf Outing at Iron Masters County Club in Roaring Springs, Pennsylvania. It was sponsored by St. Francis University Social Work Club under the direction of Dr. Mark Lynch and Professor Suzanne Black. It was a [...]
Category Archives: Family Stories
3rd Annual Cody Munz Memorial Golf Scramble Held for Families of SMA
Golfing to Remember Cody and to Find a Cure for SMA The 3rd Annual Cody Munz Memorial Golf Scramble was held September 11, 2010 in Fishers, Indiana. We began holding this event after the death of our son in 2008. In addition to golf, we also held a silent auction to help our cause. This year, we raised [...]
2010 Annual Haley Mitchell Ski-a-Thon Raises over $33,000 for Families of SMA
Participants Skied to Remember Haley and to Fight to Find a Cure for SMA The 2010 Haley Mitchell Ski-a-thon was held on October 16, 2010, two weeks after the original date, which was cancelled due to a rain deluge. Beaver Lake in Gates County, North Carolina got approximately 18 inches of rain in 48 hours, which flooded the lake [...]
Tampa Maluko Golf Classic Raises over $36,000 in its 12th Year for Families of SMA
Charity Golf Tournament Held in Honor of Tyler Hernandez The Maluko (defined as “good friend” made up by us) began as a simple way to show our passion for the game of golf and the camaraderie of good friends and good cheer. We started by providing for the neediest kids in the Boys and Girls [...]
Memories of Woman’s Grandchildren Inspires Poetry Chapbook Benefiting Families of SMA
View from a Kayak in Autumn has Raised Over $400 for FSMA, Along with Unmeasurable SMA Awareness Sheila Murphy and her husband Russ have lost two beloved grandchildren, Cianan DeWeer Murphy (June 21, 1997 – May 19, 1998) and Cecilia Lehan Murphy (April 26, 1999 – July 13, 2000), to SMA Type 1. Their son Brian [...]
1st Annual Rusty Rudder Golf Tournament Helps Raise $4,000 for Families of SMA
Friends of Brielle and Brooke Kennedy and The Rusty Rudder Work to Raise Awareness about SMA Skybrook Golf Course in Huntersville, North Carolina, hosted The Rusty Rudder’s 1st Charity golf tournament for Families of SMA. It was a beautiful day that hosted over 140 golfers. Brielle and Brooke Kennedy, who suffer from Spinal Muscular Atrophy (SMA) [...]
4th Annual Garage Sale for a Cure Raises Over $18,500 for Families of SMA
“Kyra’s Idea, Angie’s Hope” Surpasses Fundraising Goals About four years ago, Kyra Scadden began collecting pennies in an effort to raise money to help find a cure for her friend Angie Lee’s disease, Spinal Muscular Atrophy. In 2006, the fundraising efforts turned into an annual Garage Sale event, drawing thousands of dollars. This year’s Garage [...]
2nd Annual North Carolina Walk-n-Roll Raises $35,000 for Families of SMA
Gray’s Gang Gears up for 3rd Annual Event in April We held our 2nd Annual Cure SMA Walk-n-Roll for Gray’s Gang on a sunny Saturday, April 24 in Charlotte, North Carolina. We were thrilled with the turnout and enthusiasm to help find a cure for SMA. Because of the outpouring of support from our community, [...]
Rodeo Held in Honor of Addison Tarrence and Spinal Muscular Atrophy
$1,200 Raised on Two Different Rodeo Nights for Families of SMA On Saturday, September 25, at Jefferson County Fairgrounds in Fairfield, Iowa, and on Saturday, October 9, in Keosauqua, Iowa, the Crazy 3 Buck’n Bulls & Cattle Co. decided to hold a unique rodeo event that showcased Addison Tarrence and SMA. The Crazy 3 Buck’n [...]
Bingo Event in Sao Paulo, Brazil, Raises $5,000 for Spinal Muscular Atrophy
Charity Bingo Event Held in Honor of Valeria Valdez The Bingo Breakfast is a charity event that Alexandra Betancur put together to spread awareness about SMA and raise funds for the cure. She has a daughter with SMA type 3b and she is no longer able to walk unassisted. The response of all her friends made [...]
