So Many Fundraising Events…4 Annie!
In honor of SMA Awareness Month, Families of SMA would like to feature the Grimes Family as Fundraising Stars! Over the past 12 months, the Grimes Family has been dedicated to hosting and organizing non-stop fundraising events for Families of SMA in memory of their forever nine month old girl, Annie, [...]
Category Archives: Family Stories
Grimes Family Raises over $16,000 for Families of SMA and Counting!
Dr. Mark Wallis’ Patients Raise Money for Families of SMA
Creating Awareness and Raising Funds to Find a Cure for Spinal Muscular Atrophy
We (the family of Matthew Wallis) pray daily that the money we raise will help find a cure for Matthew. Thank you for working hard to find a cure. As always, this money was raised by the patients of Dr. Mark Wallis. Their [...]
Scrapbookers Come Together for the Fifth Annual Emmy’s Crop for SMA
A Day of Scrapbooking for Emmy Rose and Families of SMA
Brandy Baugher and Sandra Cromer hosted the fifth annual Emmy’s Crop for SMA on March 12, 2011 at the old Parkville Fire Company in Hanover, Pennsylvania. Almost 100 women scrapbooked from 9am to 9pm while enjoying time with family and friends. Scrapbookers enjoyed great food [...]
Kansas Community Holds Fundraiser for Families of SMA in Honor of Ayden Trammel
Barbeque at Local Store Raises Funds and Awareness of SMA
A fundraiser was held on Sunday, June 5th, 2011 in honor of Ayden Trammel, SMA Type I. Ayden is four years old and lives in Lincoln, Nebraska. The event took place in Phillipsburg, Kansas where his grandparents and other family members live. It was held at [...]
The Helfrich Family Hosts the Spaghetti, Music and Auction Dinner to Raise Awareness and Support Families of SMA
Family and Friends Come Together for Dinner and Raise $8,906
The Helfrich family held a Spaghetti, Music and Auction (SMA) dinner on May 14th, 2011 in Akron, Ohio. We were thrilled to have over 250 people in attendance. We served a wonderful spaghetti dinner and some other events of the evening included a wonderful performance by [...]
Rebecca Gordon Raises $4,148 Benefitting Families of SMA for Her Bat Mitzvah
Sister Raises Money For Families of SMA in Memory of Her Brother
Fourteen years ago my brother, Joshua Michael, was born with SMA. Tragically, Joshua passed away as an infant. Since this time, my family has supported FSMA in raising money for SMA research. As part of my Bat Mitzvah, I encouraged my family and friends [...]
Casey Reeves Runs the Salt Lake City Marathon to Support Families of SMA and to Honor His Angel
A Father’s Tribute to His Daughter, Saydria
When our little girl died, I thought my heart would shatter. It felt like a natural law had been broken—why was the parent here and the child gone? As I struggled to make sense of our tragedy, it seemed like I was only allowed a moment of grief. Everyone [...]
Jellico High School Raises Money for Families of SMA
Student Council Duck Race Raises Money and Awareness for FSMA
The Jellico High School Student Council held its first annual FSMA Duck Race. Jellico High is a small school located in northeast Tennessee. In honor of present junior member, Casey Douglas, the student council decided to adopt FSMA as their fund raising charity. The council realized [...]
Phi Tau Omega Trivia Night held for Families of SMA
Sorority Trivia Night Raises Money for SMA Research
Enclosed please find checks from our Trivia Night and also a picture of the ladies from the Phi Tau Omega sorority of St. Louis, MO. They have been loving their trivia for the last few years. Brittany Carpenter was a special guest at our trivia this year. Together [...]
8th Annual Night of 1,000 Kicks Held for FSMA
Continuing the Fight to Find a Cure for SMA
More than 25 students and supporters participated in Alpha Tae Kwon Do Academy’s 8th Annual Night of 1,000 Kicks on December 29, 2010 in memory of Rachel Rollinson. This year, the event raised more than $2,075 for Families of Spinal Muscular Atrophy. Before the kicking began, Renshi [...]
