5th Hawaiian Luau Raises Funds to Fight Spinal Muscular Atrophy
On August 7, 2010 Naperville, IL was a little more tropical than usual as the 5th Hawaiian Luau Fundraiser for Families of Spinal Muscular Atrophy took place at Jane Avenue. This biannual event took root 11 years ago after Henry Hamman passed away from complications due to SMA. Neighbors of the Hamman Family wanted to dedicate their [...]
Category Archives: Family Stories
Neighborhood Joins Together to Raise $31,000 for FSMA in Memory of Local Child
Wittman Family Holds a Bakeless Bake Sale for SMA Research
Bakeless Bake Sale Held in Honor of Amy Wittman Green
Amy Wittman Green is pictured here with her 10 day old daughter (in the picture-she is now almost 6 weeks old) at the Wittman Family Bakeless Bake Sale, held for FSMA on June 25th. The Wittman family has held 14 Golf Tournaments for FSMA research, but [...]
Larkie Lu Bows Raises Money for Families of SMA
Unique fundraiser donates portions of sales from hair bows
Gina Bish, mother of Larkin Bish, SMA type I, raises money for Families of SMA through the sales of her hand-made hair bows. The company is called Larkie Lu Bows, and she sells the boutique quality bows online through her website, www.larkielubows.com. 10% of every sale gets [...]
Bowl for a Cure Fundraiser Raises Money for SMA Research
Super Bowl Sluggers event held on June 10th
Jennifer Bolen and Pam Pynenberg organized a Bowl-a-Thon fundraiser for Families of SMA, Bowl for a Cure, which raised $2,230! This money has been dedicated specifically to SMA research. This was also the first year they held the fundraiser. It was on Saturday, June 10th at Superbowl in [...]
Unique Scrapbooking Fundraiser – Fourth Annual Emmy’s Crop for SMA – Raises $7,000
93 Women Spend the day Scrapbooking for Emmy Rose and Families of SMA
Brandy Baugher, Sandra Cromer and friends, held the fourth annual Emmy’s Crop for SMA on March 13, 2010 at the old Parkville Fire Company in Hanover, Pennsylvania. Ninety-three women scrapbooked from 9AM to 9PM, while enjoying time with family and friends. Great food and [...]
12th Annual Wannabe Charity Golf Tournament held for Families of SMA
Wannabe Tournament Raises over $2,300
The Wannabe Charity Golf Tournament held its 12th consecutive annual tournament in July of 2010. This year it was held at Sunriver, Oregon. The tournament began its charity component in 2004, after one of its player’s children, Skylar Bahrenburg, was diagnosed with SMA. This year the tournament raised over $2,300, and to date they [...]
Families of SMA Congratulates the Gaynor Family of Sophia’s Cure on their Amazing Fundraising Success
Sophia’s Cure Surpasses $200,000 Goal
Families of SMA would like to thank Sophia’s Cure and Vincent & Catherine Gaynor of Wantagh, New York for all their hard work and dedication to raising a remarkable amount of money and awareness for SMA! Shortly after they found out their daughter Sophia has Spinal Muscular Atrophy (SMA Type I) [...]
Record Attendence at 3rd Annual Cure SMA: Run, Walk-n-Roll in honor of Seth Gilley
Over 400 people come together to raise funds and work towards a cure
The 3rd Annual Cure SMA: Run, Walk-N-Roll was a huge success! The fundraising event was held on May 8, 2010 in Stephenville, Texas in honor of Seth Gilley to benefit Families of SMA. The event was kicked off with a two mile fun [...]
First Fundraiser a Major Success, Raising Just Under $3,000 for FSMA
Danita Chisholm’s Raffle Fundraiser Goes Above and Beyond Expectations
In April, Danita Chisholm held her first fundraiser to help fight for the cure to SMA. She held a raffle called Kure4Kalei, and successfully raised $2,780! Her daughter Kalei has SMA Type 1.
Wanting to start on a smaller scale with the fundraiser, Danita made fliers with Kalei’s picture (shown [...]
Durazzo Family Hosts Appetite for a Cure Fundraiser for FSMA
3rd Annual Fundraiser most Successful yet, Raising $3,000 for a Cure
April 5th would have been our daughter Aleah’s 3rd birthday. Every year since her passing I have tried to do some type of fundraising in her honor. When she first passed we sold bracelets, then on her first birthday (I was pregnant with twins and [...]
