Family and Friends Raise $2,175 in Honor of Kherington Shippee
Our now two year old daughter Kherington was diagnosed with SMA Type II last January. This summer many friends got together and held several benefits in her honor. The people who have shown support were named “Team Kherington.” I believe there were five benefits held by [...]
Category Archives: Family Stories
Team Kherington Host Benefits for Spinal Muscular Atrophy
Fight for Ford Events Held to Raise Money and Awareness for Families of Spinal Muscular Atrophy
Family and Friends Support the Sniezek Family Through Hosting Fundraising Events in Honor of Ford
Ford Sniezek was diagnosed with Spinal Muscular Atrophy Type I on February 3, 2011 at 4 months of age. Since his diagnosis, his family rallied around him in an effort to raise money to offset Ford’s medical expenses as well as [...]
Friends Participate in the Baltimore Running Festival to Raise Funds and Awareness for Families of SMA
Family, Friends and Co-Workers Donate to Online Gift Registry in Memory of Ciara Rose Van De Loo
When my friend Kate emailed to say that her newborn baby girl Ciara Rose Van De Loo had SMA, an internet search of the acronym brought about a wave of sadness. Ciara was just 10 months old before [...]
Race 4 Grace Raises Over $3,400 for Families of SMA
Cycling to Find a Treatment and a Cure for SMA in Honor of Grace Nelson
This July, the 5th Annual Race 4 Grace was held in conjunction with RAGBRAI (The Register’s Annual Great Bike Ride Across Iowa). The Race 4 Grace Team for RAGBRAI has been riding together since 2007. Team members include family, friends, relatives [...]
Bella’s Benefit for SMA Hosted by Sliter Family to Raise Money and Awareness for Families of SMA
Comedy Night and Quilt Raffle Held in Honor of Isabella Sliter
Bella’s Benefit for SMA was a huge success. Thanks to everyone who participated, whether it was purchasing raffle tickets for the beautiful quilt, or coming to the comedy event held at The Gold Room. We were able to raise just over $1,700 and are [...]
1st Annual 18 For Emerson Charity Golf Tournament Held for Families of SMA
Family and Friends Come Together to Raise Awareness and Funds in Honor of Emerson Chambers
The 1st Annual 18 for Emerson Charity Golf Tournament was held on August 29th, 2011 in Prior Lake, Minnesota to raise money for Families of SMA in their efforts to find a treatment and a cure for Spinal Muscular Atrophy. We had 74 [...]
13th Annual Wannabe Charity Golf Tournament Held for Families of SMA
Family and Friends Reunite to Honor Skylar Bahrenburg
The annual reunion of the Wannabe Charity Golf Tournament was held in Lake Tahoe this year, from August 4th-6th. The event always begins with an “Opening Ceremony” and ends on the last day with “Closing” which hosts a variety of prizes, awards, announcements of winners, and pictures of [...]
Once Upon A Cure Fundraiser Held at Stonegate Elementary School for Families of SMA
Students, Staff and Parents Work Together to Raise $6,284 in Honor of Cody Munz
I am a teacher at Stonegate Elementary School and my son, Cody, lost his battle with SMA in 2008. This year Stonegate held its fifth annual Once Upon a Cure fundraiser event on June 3rd and donated all of its proceeds [...]
4th Annual Cure SMA: Run, Walk-n-Roll in Honor of Seth Gilley Raises $12,259 for Families of SMA
Over 350 People from the Stephenville Community Enjoy the Run, Walk-n-Roll Festivities
We had our 4th Annual Cure SMA: Run, Walk-N-Roll honoring Seth Gilley (SMA, Type II) on May 7, 2011 at the Stephenville City Park. It was a big success, raising $12,259 for Families of SMA. It was a beautiful day enjoyed by over 350 [...]
2nd Annual “Laugh Away SMA” Hosted by Jeff & Dee Horton for the Stop SMA Foundation and Families of SMA
Two Organizations Collaborate to Find a Treatment and a Cure for Spinal Muscular Atrophy
The 2nd Annual “Laugh Away SMA” comedy showcase presented by Stop SMA took place on Saturday, August 6th, 2011 at the Muse Center on the Rankin Campus of Hinds Community College. This family friendly event is a unique way to spread the [...]
