Category Archives: Chapter Stories

Families of SMA- Wisconsin Chapter Participates In 7th Annual Grant Sheppard Memorial Scramble for SMA

Family and Friends Raise $9,000 in Memory of Grant On Friday, September 2, 2011, the 7th Annual Grant Sheppard Memorial Scramble for SMA was held at Hickory Hills Country Club in Chilton, Wisconsin.  The golf outing was held on what would have been Grant’s 7th birthday.  We are proud to be sending you the proceeds [...]

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Orange County Mustang Club Car Show Raises Over $800 for Families of SMA-Southern California Chapter

50/50 Drawing Held to Benefit Families of SMA in Honor of Kennedy Montoya Renee King, Grandmother to eight year old Kennedy Montoya, is the secretary of the Orange County Mustang Club in the County of Orange in California.  The club has three car shows a year and there is always a 50/50 Drawing for SMA.  [...]

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US Geological Survey Hosts Fundraiser for Families of SMA- Louisiana Chapter

FSMA Named as Annual Charity Sponsor The United States Geological Survey Office in Baton Rouge, Louisiana has named Families of SMA as their annual charity sponsor!  Over the next twelve months, all employees will have the opportunity of donating through payroll deduction and participating in weekly lunch fundraisers!  Each Thursday, lunches will be sold for [...]

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$40,000 in 40 Days Fundraiser Surprises Courtney West

Fundraising Event for Courtney’s 40th Birthday Honors the Memory of Her Children Wayland and Piper Courtney Buck West, a mother of two SMA angels, turned 40 in November and we planned a BIG surprise!  We invited her closest friends and family to join us in raising $40,000 in 40 days for Families of Spinal Muscular [...]

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Jumpin’ Jeepers Hosts Fundraiser for the Families of SMA – Greater New York Chapter

Event Raises Funds and Awareness in Memory of Max Rubenstein The Jumpin’ Jeepers Fundraiser was held on Monday, October 10th, 2011 in Mahopac, New York.  Instead of our initial plan of donating admissions from the four hour time frame, we ended up donating our admissions for the whole day!  We also put out a donation [...]

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Long Beach High School Varsity Football Team Supports Families of SMA- Greater New York Chapter

Donations Collected at Home Games to Help Find a Treatment and Cure for Spinal Muscular Atrophy Many thanks to the Long Beach High School Marines Varsity Football Team for raising $840 for the Greater New York Chapter. Special thanks to Coach Scott Martin and his wife, Andrea Martin, who worked very hard to collect donations [...]

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Families of SMA- Southern California Chapter Hosts the IE All Star Jam

Local Bands Headline Concert to Raise Funds for Families of Spinal Muscular Atrophy The IE All Star Jam was held on Sunday, October 16th, 2011 at the Citrus State Historic Park in Riverside, California.  The venue was a perfect setting for family and friends to come together and enjoy a concert all while raising funds [...]

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Families of SMA- Minnesota Chapter Hosts 11th Annual Walk-n-Roll

Family and Friends Team Up to Raise Over $15,000 for Families of SMA The Minnesota Chapter hosted their 11th Annual Walk-n-Roll event on Sunday, September 11th, 2011 at Lake Phalen Pavilion in St. Paul, Minnesota.  The morning brought bright sunshine and mild temperatures- perfect weather for a walk!  We were pleased with the great turnout [...]

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Families of SMA- New England Chapter Hosts the 5th Annual Fall Classic Charity Golf Tournament

Family and Friends Raise Over $38,000 in Honor of William Johnson The 5th Annual Fall Classic FSMA Charity Golf Tournament was held on October 14, 2011.  Even though the weather did not cooperate, there was great turnout of golfers for the tournament!  The day was extra special because William toughed it out and spent the [...]

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1st Annual Sacramento Walk-n-Roll Held for Families of SMA

Sacramento Community Unites to Help Find a Treatment and a Cure for Spinal Muscular Atrophy When Nina Daya and her Cisco co-workers set their sights on hosting the first Walk-n-Roll for Families of SMA in Sacramento, they had no doubt it would be such a rich and rewarding experience. In three short months, Cisco employees [...]

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