Fundraising Event for Courtney’s 40th Birthday Honors the Memory of Her Children Wayland and Piper
Courtney Buck West, a mother of two SMA angels, turned 40 in November and we planned a BIG surprise! We invited her closest friends and family to join us in raising $40,000 in 40 days for Families of Spinal Muscular Atrophy. [...]
Category Archives: Chapter Stories
$40,000 in 40 Days Fundraiser Surprises Courtney West
Jumpin’ Jeepers Hosts Fundraiser for the Families of SMA – Greater New York Chapter
Event Raises Funds and Awareness in Memory of Max Rubenstein
The Jumpin’ Jeepers Fundraiser was held on Monday, October 10th, 2011 in Mahopac, New York. Instead of our initial plan of donating admissions from the four hour time frame, we ended up donating our admissions for the whole day! We also put out a donation [...]
Long Beach High School Varsity Football Team Supports Families of SMA- Greater New York Chapter
Donations Collected at Home Games to Help Find a Treatment and Cure for Spinal Muscular Atrophy
Many thanks to the Long Beach High School Marines Varsity Football Team for raising $840 for the Greater New York Chapter. Special thanks to Coach Scott Martin and his wife, Andrea Martin, who worked very hard to collect donations at [...]
Families of SMA- Southern California Chapter Hosts the IE All Star Jam
Local Bands Headline Concert to Raise Funds for Families of Spinal Muscular Atrophy
The IE All Star Jam was held on Sunday, October 16th, 2011 at the Citrus State Historic Park in Riverside, California. The venue was a perfect setting for family and friends to come together and enjoy a concert all while raising funds and [...]
Families of SMA- Minnesota Chapter Hosts 11th Annual Walk-n-Roll
Family and Friends Team Up to Raise Over $15,000 for Families of SMA
The Minnesota Chapter hosted their 11th Annual Walk-n-Roll event on Sunday, September 11th, 2011 at Lake Phalen Pavilion in St. Paul, Minnesota. The morning brought bright sunshine and mild temperatures- perfect weather for a walk! We were pleased with the great turnout and [...]
Families of SMA- New England Chapter Hosts the 5th Annual Fall Classic Charity Golf Tournament
Family and Friends Raise Over $38,000 in Honor of William Johnson
The 5th Annual Fall Classic FSMA Charity Golf Tournament was held on October 14, 2011. Even though the weather did not cooperate, there was great turnout of golfers for the tournament! The day was extra special because William toughed it out and spent the [...]
1st Annual Sacramento Walk-n-Roll Held for Families of SMA
Sacramento Community Unites to Help Find a Treatment and a Cure for Spinal Muscular Atrophy
When Nina Daya and her Cisco co-workers set their sights on hosting the first Walk-n-Roll for Families of SMA in Sacramento, they had no doubt it would be such a rich and rewarding experience.
In three short months, Cisco employees Emily Klover, [...]
Hamilton Heights High School Sponsors Service Project for Families of SMA-OKI Chapter
Honor Society Hosts Fundraising and Awareness Event in Honor of Alexander Davis
On September 6th, 2011, the Honor Society at Hamilton Heights High School in Arcadia, Indiana put on a fundraising and awareness event for Families of SMA. Alexander Davis, SMA Type II, visited the event for a picture session with the Honor Society officers. Everyone [...]
Families of SMA- Pennsylvania Chapter Participates in Friends Helping Friends Day at Boscov’s Department Store
Raising Funds and Awareness in Honor of Eden Cheslock
Boscov’s Department Store hosted the popular Friends Helping Friends, a special day filled with fun and fund-raising, to benefit area non-profit organizations on Tuesday, October 4, 2011. In October 2010, Friends Helping Friends day was a tremendous success, raising over $500,000 for service organizations in communities [...]
Families of SMA- Minnesota Chapter Teams Up with Local Sam’s Club to Host Cookout Fundraiser
Community Joins Together to Raise Money and Awareness for FSMA
On August 27th and 28th, 2011, the Minnesota Chapter held a cookout fundraiser at the Sam’s Club in Fridley, Minnesota. The Chapter set up a tent, table and a grill outside of the store and sold hot dogs, brats and hamburgers with all proceeds going [...]
