Family and Friends Raise Funds and Awareness in Honor of the Anco Family
There were two main reasons why I started the W.A.M. 5k. First, I became a runner about eight years ago. Over the years, I have run nine marathons, one 20-miler, six half-marathons and about a dozen 5ks. Ever since I started running I [...]
Category Archives: Chapter Stories
2nd Annual William Anco Memorial 5k Held for Families of SMA- Minnesota Chapter
Gospel Concert Fundraiser Hosted by the Whited Family for Families of SMA- Tennessee Chapter
Family and Friends Raise Over $2,900 in Memory of Alana Christine Whited
On September 24th, 2011 a gospel concert was held at Immanuel Baptist Church in Lebanon, Tennessee in memory of our little girl, Alana Christine Whited. We wanted to help spread the word about Spinal Muscular Atrophy to help others learn about this disease and [...]
Cordova Family Recognizes Efforts of Repligen Team and their Research for Families of SMA
Repligen Team Generously Donates Holiday Gift
Repligen received a holiday card and check from the family of Hugo Cordova from Miami, Florida. The Cordova Family was appreciative of Repligen’s efforts in developing treatments for Spinal Muscular Atrophy as their son Gabriel has SMA. They wanted to have the Research and Development team be “rewarded” with a $500 [...]
Casten Family Sells Mama Bracelets’ “Cure SMA” Awareness Bracelets for Families of SMA- Illinois Chapter
Over $2,000 Donated to FSMA for Critical Research and Family Support Programs
By the time our daughter, Ella, was diagnosed with SMA Type II Mama Bracelets had existed for almost one year. In that time we had raised money through bracelets and necklaces for several organizations including The Rett Research Trust, The American SIDS Institute, [...]
St. Agatha School Walk Held for Families of SMA- New England Chapter
Students and Staff Raise $10,000 in Honor of Aileen Farrell
On October 28, 2011, the students of St. Agatha School in Milton, Massachusetts held a walk to benefit Families of Spinal Muscular Atrophy. The students obtained pledges, then walked laps around the school for FSMA.
School staff member Michelle Tierney organized and coordinated the event that was [...]
Christmas Fundraiser Hosted by the Morrongiello Family for Families of SMA- South Jersey/Delaware Chapter
Family and Friends Raise $1,300 for Families of SMA
On December 17th we were having a small Christmas gathering at our home. The idea started out when our home was finished being decorated. The lights, the tree and the decorations both inside and out, were finally finished! Looking upon everything, we decided that it looked so [...]
Team Reach for the Sky Unites Family and Friends to Raise Money and Awareness for Families of SMA
440 Donors Raise Over $36,000 in Memory of Skylar Bahrenburg
On Sunday, October 9, 2011, Team Reach for the Sky successfully completed the San Diego to Coronado Sharkfest swim! All team members made it safely to shore. And nary a shark was spotted in the process, although a few swimmers did report seeing a mean-looking halibut [...]
Families of SMA- Wisconsin Chapter Participates In 7th Annual Grant Sheppard Memorial Scramble for SMA
Family and Friends Raise $9,000 in Memory of Grant
On Friday, September 2, 2011, the 7th Annual Grant Sheppard Memorial Scramble for SMA was held at Hickory Hills Country Club in Chilton, Wisconsin. The golf outing was held on what would have been Grant’s 7th birthday. We are proud to be sending you the proceeds that [...]
Orange County Mustang Club Car Show Raises Over $800 for Families of SMA-Southern California Chapter
50/50 Drawing Held to Benefit Families of SMA in Honor of Kennedy Montoya
Renee King, Grandmother to eight year old Kennedy Montoya, is the secretary of the Orange County Mustang Club in the County of Orange in California. The club has three car shows a year and there is always a 50/50 Drawing for SMA. Kennedy [...]
US Geological Survey Hosts Fundraiser for Families of SMA- Louisiana Chapter
FSMA Named as Annual Charity Sponsor
The United States Geological Survey Office in Baton Rouge, Louisiana has named Families of SMA as their annual charity sponsor! Over the next twelve months, all employees will have the opportunity of donating through payroll deduction and participating in weekly lunch fundraisers! Each Thursday, lunches will be sold [...]
