In Lexington, More Than 200 Runners, Walkers and Rollers Raise Over $10,000
Kentucky’s 4th Annual Walk N Roll was held at Keeneland Race Course in Lexington on Saturday, August 14, 2010. More than 150 people joined us for our one mile fun walk. Additionally, over 50 people participated in our first ever 5K race. Together, we [...]
Category Archives: Chapter Stories
4th Annual Kentucky Walk-n-Roll Raises Awareness and Funds for SMA
Jocelyn Paige Lee Foundation holds 3rd Annual Silent Auction Dinner Benefit in Support of SMA
Dinner and Auction Raises Funding and Awareness in Honor of Jocelyn Paige Lee, SMA Type I
On Saturday, April 17th the Jocelyn Paige Lee Foundation held their 3rd annual Silent Auction Dinner Benefit. A portion of the evening’s proceeds were donated to Families of SMA. The Jocelyn Paige Lee Foundation was started to benefit Jocelyn Paige [...]
7th Annual Malorie Fox Golf Tournament Makes a Hole in One for SMA!
This Year’s Golf Tournament Continued to Raise Awareness of SMA and Support for Research
We’re thrilled to report that the Malorie Fox Golf Tournament for Families of SMA – Year # 7 was another big success for the Families of SMA – Michigan Chapter! We had a lot of return golfers, as well as quite a few [...]
New Business, Treasure Tavern, Supports Families of SMA – Greater Florida Chapter
Grand opening of the new restaurant supports efforts for SMA research
On Saturday, July 10 the Greater Florida Chapter was the recipient of a $2,250 check from Orlando’s newest adult dinner show, Treasure Tavern. To coincide with Treasure Tavern’s grand opening, they hosted an online voting contest where six charities competed for votes and money. The [...]
Martin Family Brings Wisconsin SMA Families Together
Families of SMA and friends were able to connect and enjoy a great meal in support of SMA Research
An Evening of Hope for Ari was a success! Although we ran into problems days before the event, the families pulled together and made the night wonderful, raising a total of $295 for Families of SMA! We [...]
Spreading the Warmth with Andy’s Army in Support of Families of SMA
Audra and Alan Butler donate blankets for Families of SMA Type 1 Care Packages
Andy Butler was diagnosed with Spinal Muscular Atrophy Type I in March 2009, when he was nine weeks old. After several hospitalizations and a tremendous fight, Andy lost his battle with the disease on June 4, 2009, earning his angel’s wings just [...]
Families of SMA – OKI Chapter Hosts 7th Annual Walk-n-Roll in Support of SMA Research
Rain or shine, the participants of this year’s annual OKI Walk-n-Roll were steadfast in their support of SMA
The 7th Annual Walk-n-Roll took place May 1, 2010 at the Cintas Center, Xavier University. Although it rained and was held inside this year it did not dampen the spirits of the many walkers and volunteers who came [...]
6th Annual Families of SMA – Greater NY Chapter Held Walk-n-Roll in Support of SMA Research
All participants shared in remembering Max Rubenstein and all of those affected by SMA at this year’s Walk-n-Roll in New York
The Greater New York Chapter of Families of SMA held their 6th Annual Walk N Roll on June 5, 2010. This year’s Walk N Roll honored the memory of Max Rubenstein who lost his battle [...]
Families of SMA – Pennsylvania Chapter Hosts Local Walk-n-Roll Raising over $90,000 in Support of SMA
Families and friends from all over came together in support of finding a treatment and a cure for Spinal Muscular Atrophy
On May 16, 2010, the Families of SMA – Pennsylvania Chapter hosted its 7th Annual Walk-n-Roll to Cure SMA! Over 700 people joined our effort to cure this horrendous disease while enjoying games, jugglers, raffles, [...]
Potter Family and the Camden Riversharks Join Forces in Support of FSMA
Baseball, good food and great weather helped the Potter Family host yet another successful event for Families of SMA
The Potter Family did a fundraiser with the Camden Riversharks in Camden, NJ. For every ticket they sold, Families of Spinal Muscular Atrophy would get back $5. This event was held on Sunday, June 6th. Everyone had a [...]
