440 Donors Raise Over $36,000 in Memory of Skylar Bahrenburg On Sunday, October 9, 2011, Team Reach for the Sky successfully completed the San Diego to Coronado Sharkfest swim! All team members made it safely to shore. And nary a shark was spotted in the process, although a few swimmers did report seeing a mean-looking [...]
Author Archives:
Families of SMA- Wisconsin Chapter Participates In 7th Annual Grant Sheppard Memorial Scramble for SMA
Family and Friends Raise $9,000 in Memory of Grant On Friday, September 2, 2011, the 7th Annual Grant Sheppard Memorial Scramble for SMA was held at Hickory Hills Country Club in Chilton, Wisconsin. The golf outing was held on what would have been Grant’s 7th birthday. We are proud to be sending you the proceeds [...]
Orange County Mustang Club Car Show Raises Over $800 for Families of SMA-Southern California Chapter
50/50 Drawing Held to Benefit Families of SMA in Honor of Kennedy Montoya Renee King, Grandmother to eight year old Kennedy Montoya, is the secretary of the Orange County Mustang Club in the County of Orange in California. The club has three car shows a year and there is always a 50/50 Drawing for SMA. [...]
US Geological Survey Hosts Fundraiser for Families of SMA- Louisiana Chapter
FSMA Named as Annual Charity Sponsor The United States Geological Survey Office in Baton Rouge, Louisiana has named Families of SMA as their annual charity sponsor! Over the next twelve months, all employees will have the opportunity of donating through payroll deduction and participating in weekly lunch fundraisers! Each Thursday, lunches will be sold for [...]
$40,000 in 40 Days Fundraiser Surprises Courtney West
Fundraising Event for Courtney’s 40th Birthday Honors the Memory of Her Children Wayland and Piper Courtney Buck West, a mother of two SMA angels, turned 40 in November and we planned a BIG surprise! We invited her closest friends and family to join us in raising $40,000 in 40 days for Families of Spinal Muscular [...]
Jumpin’ Jeepers Hosts Fundraiser for the Families of SMA – Greater New York Chapter
Event Raises Funds and Awareness in Memory of Max Rubenstein The Jumpin’ Jeepers Fundraiser was held on Monday, October 10th, 2011 in Mahopac, New York. Instead of our initial plan of donating admissions from the four hour time frame, we ended up donating our admissions for the whole day! We also put out a donation [...]
Long Beach High School Varsity Football Team Supports Families of SMA- Greater New York Chapter
Donations Collected at Home Games to Help Find a Treatment and Cure for Spinal Muscular Atrophy Many thanks to the Long Beach High School Marines Varsity Football Team for raising $840 for the Greater New York Chapter. Special thanks to Coach Scott Martin and his wife, Andrea Martin, who worked very hard to collect donations [...]
Families of SMA- Southern California Chapter Hosts the IE All Star Jam
Local Bands Headline Concert to Raise Funds for Families of Spinal Muscular Atrophy The IE All Star Jam was held on Sunday, October 16th, 2011 at the Citrus State Historic Park in Riverside, California. The venue was a perfect setting for family and friends to come together and enjoy a concert all while raising funds [...]
Fight for Ford Events Held to Raise Money and Awareness for Families of Spinal Muscular Atrophy
Family and Friends Support the Sniezek Family Through Hosting Fundraising Events in Honor of Ford Ford Sniezek was diagnosed with Spinal Muscular Atrophy Type I on February 3, 2011 at 4 months of age. Since his diagnosis, his family rallied around him in an effort to raise money to offset Ford’s medical expenses as well [...]
Friends Participate in the Baltimore Running Festival to Raise Funds and Awareness for Families of SMA
Family, Friends and Co-Workers Donate to Online Gift Registry in Memory of Ciara Rose Van De Loo When my friend Kate emailed to say that her newborn baby girl Ciara Rose Van De Loo had SMA, an internet search of the acronym brought about a wave of sadness. Ciara was just 10 months old before [...]
