FSMA Named as Annual Charity Sponsor
The United States Geological Survey Office in Baton Rouge, Louisiana has named Families of SMA as their annual charity sponsor! Over the next twelve months, all employees will have the opportunity of donating through payroll deduction and participating in weekly lunch fundraisers! Each Thursday, lunches will be sold [...]
Fundraising Event for Courtney’s 40th Birthday Honors the Memory of Her Children Wayland and Piper
Courtney Buck West, a mother of two SMA angels, turned 40 in November and we planned a BIG surprise! We invited her closest friends and family to join us in raising $40,000 in 40 days for Families of Spinal Muscular Atrophy. [...]
Event Raises Funds and Awareness in Memory of Max Rubenstein
The Jumpin’ Jeepers Fundraiser was held on Monday, October 10th, 2011 in Mahopac, New York. Instead of our initial plan of donating admissions from the four hour time frame, we ended up donating our admissions for the whole day! We also put out a donation [...]
Donations Collected at Home Games to Help Find a Treatment and Cure for Spinal Muscular Atrophy
Many thanks to the Long Beach High School Marines Varsity Football Team for raising $840 for the Greater New York Chapter. Special thanks to Coach Scott Martin and his wife, Andrea Martin, who worked very hard to collect donations at [...]
Local Bands Headline Concert to Raise Funds for Families of Spinal Muscular Atrophy
The IE All Star Jam was held on Sunday, October 16th, 2011 at the Citrus State Historic Park in Riverside, California. The venue was a perfect setting for family and friends to come together and enjoy a concert all while raising funds and [...]
Family and Friends Support the Sniezek Family Through Hosting Fundraising Events in Honor of Ford
Ford Sniezek was diagnosed with Spinal Muscular Atrophy Type I on February 3, 2011 at 4 months of age. Since his diagnosis, his family rallied around him in an effort to raise money to offset Ford’s medical expenses as well as [...]
Family, Friends and Co-Workers Donate to Online Gift Registry in Memory of Ciara Rose Van De Loo
When my friend Kate emailed to say that her newborn baby girl Ciara Rose Van De Loo had SMA, an internet search of the acronym brought about a wave of sadness. Ciara was just 10 months old before [...]
Family and Friends Team Up to Raise Over $15,000 for Families of SMA
The Minnesota Chapter hosted their 11th Annual Walk-n-Roll event on Sunday, September 11th, 2011 at Lake Phalen Pavilion in St. Paul, Minnesota. The morning brought bright sunshine and mild temperatures- perfect weather for a walk! We were pleased with the great turnout and [...]
Family and Friends Raise Over $38,000 in Honor of William Johnson
The 5th Annual Fall Classic FSMA Charity Golf Tournament was held on October 14, 2011. Even though the weather did not cooperate, there was great turnout of golfers for the tournament! The day was extra special because William toughed it out and spent the [...]
Sacramento Community Unites to Help Find a Treatment and a Cure for Spinal Muscular Atrophy
When Nina Daya and her Cisco co-workers set their sights on hosting the first Walk-n-Roll for Families of SMA in Sacramento, they had no doubt it would be such a rich and rewarding experience.
In three short months, Cisco employees Emily Klover, [...]
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