Two Mothers Come Together to Bring Hope and Strength to the SMA Community The First Annual Gala of Hope to Cure SMA was held on Saturday, November 17th, 2011 at the Gryphon Club within the Seminole Hard Rock Hotel and Casino in Hollywood, Florida. I decided I wanted to put together an event that would [...]
Monthly Archives: February 2012
2nd Annual Working on Walking Golf Tournament Hosted for Families of SMA- New England Chapter
Over $10,000 Raised Through Generosity of Family and Friends On August 8th, 2011, the Smith and Silva families joined together and hosted the 2nd Annual Alyssa Silva’s Working on Walking Golf Tournament which was held at Louisquisett Golf Club in North Providence, Rhode Island. Friends and family gathered to support fundraising efforts for Families of [...]
Grimes Family Sells Annie Girl Cookbooks for Families of SMA- OKI Chapter
335 Cookbooks Purchased in Memory of Annie Grimes We are proud to present Families of SMA with $2,310 from sales of Our Annie Girl Cookbooks! Annie Grimes’ Nana, Shelia Violette, started this project in the fall of 2011 on Annie’s 2nd Birthday, October 13th, and has sold 335 cookbooks so far! The books feature over [...]
5th Annual Ride for Alex Held for Families of SMA- New England Chapter
Community Raises Money and Awareness for Families of SMA The 5th Annual Ride for Alex was held on Sunday, September 18th, 2011 at Old Rochester Regional High School in Dartmouth, Massachusetts. About 100 people and 35 riders attended the event and enjoyed music, raffles and local vendors including the Minuteman Harley Davidson and Colonial South [...]
Lyla Mertz Foundation’s Second Annual Dance Away SMA Benefit
“Team Lyla” Raises Over $6,000 for Families of SMA Steven and Jennifer Mertz started the Lyla Mertz Foundation in memory of their beautiful daughter Lyla who passed away from Spinal Muscular Atrophy at five months old. Throughout the year, they host a variety of events to create community awareness, fund research, and help support other [...]
