Tournament Raised Over $27,000 for the New England Chapter
On Monday, August 2, 2010, the Barrett Family had their 13th annual golf tournament for Families of SMA. Bear Hill Country Club in Stoneham, MA hosted the event, and many members paid to play at their own club. Major sponsors included the Barrett, Twomey, Boulter and Schamberg [...]
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Alabama Chapter Teams up with Cookies for Ava Fund
On Sunday, August 29 the newly established Cookies for Ava Fund had their first bake sale at Knollwood Church in Mobile, AL. All of the proceeds were donated to FSMA, and the Alabama chapter collected a total of $700! Ava Renee Johnson was born on February 26, [...]
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Company Bake Sale and Awareness Event Raises $2,587 for SMA
Nina Daya and Mauro Angelini celebrated the birth of their first child, Malena Angelini, like many parents – with complete joy and adoration. Unfortunately, on August 13, 2007 the family learned Malena suffered from Spinal Muscular Atrophy (Type II). The initial news brought a new focus [...]
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RAGBRAI Team Race 4 Grace Raises over $4,800 for Families of SMA
Every summer since 1973, the Des Moines Register hosts a huge event called RAGBRAI, which stands for Register’s Annual Great Bike Ride Across Iowa. RAGBRAI attracts tens of thousands of cyclists from across the country, who spend the week riding about 75 miles a [...]
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Lemonade Sales Raise $141.75 for Families of SMA
Courtney and Kendall Rosas, along with Linda Rosas and The Lemonade Kids from South Houston, TX, teamed up to raise a grand total of $141.75 for Families of SMA! The Lemonade Kids want to thank Discount Tire for letting them set up Courtney’s Lemonade Stand there to help raise awareness [...]
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Cheerleading Squad Wins Talent Show and Donates the Proceeds to Families of SMA
On June 9th 2010, Rebels Junior Squad Cheerleaders, Sammi Ennico, Aaliyah Mitchell, Brianna Vaughan, Briana Hughes, Joe Vanderpool, Kaitlyn Sortore, & Michaela Hawkins competed in the Bangor Area Middle School Musical Talent show, and Won! These Kids put together their own music mix [...]
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5th Hawaiian Luau Raises Funds to Fight Spinal Muscular Atrophy
On August 7, 2010 Naperville, IL was a little more tropical than usual as the 5th Hawaiian Luau Fundraiser for Families of Spinal Muscular Atrophy took place at Jane Avenue. This biannual event took root 11 years ago after Henry Hamman passed away from complications due to SMA. Neighbors of the Hamman Family wanted to dedicate their [...]
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