In Lexington, More Than 200 Runners, Walkers and Rollers Raise Over $10,000
Kentucky’s 4th Annual Walk N Roll was held at Keeneland Race Course in Lexington on Saturday, August 14, 2010. More than 150 people joined us for our one mile fun walk. Additionally, over 50 people participated in our first ever 5K race. Together, we [...]
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Dinner and Auction Raises Funding and Awareness in Honor of Jocelyn Paige Lee, SMA Type I
On Saturday, April 17th the Jocelyn Paige Lee Foundation held their 3rd annual Silent Auction Dinner Benefit. A portion of the evening’s proceeds were donated to Families of SMA. The Jocelyn Paige Lee Foundation was started to benefit Jocelyn Paige [...]
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This Year’s Golf Tournament Continued to Raise Awareness of SMA and Support for Research
We’re thrilled to report that the Malorie Fox Golf Tournament for Families of SMA – Year # 7 was another big success for the Families of SMA – Michigan Chapter! We had a lot of return golfers, as well as quite a few [...]
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Bakeless Bake Sale Held in Honor of Amy Wittman Green
Amy Wittman Green is pictured here with her 10 day old daughter (in the picture-she is now almost 6 weeks old) at the Wittman Family Bakeless Bake Sale, held for FSMA on June 25th. The Wittman family has held 14 Golf Tournaments for FSMA research, but [...]
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Unique fundraiser donates portions of sales from hair bows
Gina Bish, mother of Larkin Bish, SMA type I, raises money for Families of SMA through the sales of her hand-made hair bows. The company is called Larkie Lu Bows, and she sells the boutique quality bows online through her website, www.larkielubows.com. 10% of every sale gets [...]
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Super Bowl Sluggers event held on June 10th
Jennifer Bolen and Pam Pynenberg organized a Bowl-a-Thon fundraiser for Families of SMA, Bowl for a Cure, which raised $2,230! This money has been dedicated specifically to SMA research. This was also the first year they held the fundraiser. It was on Saturday, June 10th at Superbowl in [...]
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Grand opening of the new restaurant supports efforts for SMA research
On Saturday, July 10 the Greater Florida Chapter was the recipient of a $2,250 check from Orlando’s newest adult dinner show, Treasure Tavern. To coincide with Treasure Tavern’s grand opening, they hosted an online voting contest where six charities competed for votes and money. The [...]
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Families of SMA and friends were able to connect and enjoy a great meal in support of SMA Research
An Evening of Hope for Ari was a success! Although we ran into problems days before the event, the families pulled together and made the night wonderful, raising a total of $295 for Families of SMA! We [...]
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