Monthly Archives: June 2010

First Fundraiser a Major Success, Raising Just Under $3,000 for FSMA

Danita Chisholm’s Raffle Fundraiser Goes Above and Beyond Expectations
In April, Danita Chisholm held her first fundraiser to help fight for the cure to SMA. She held a raffle called Kure4Kalei, and successfully raised $2,780! Her daughter Kalei has SMA Type 1.
Wanting to start on a smaller scale with the fundraiser, Danita made fliers with Kalei’s picture (shown [...]

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Medals Awarded to Those Affected by SMA at the 3rd Annual Families of SMA – Illinois Chapter Walk-n-Roll

Families and Friends Enjoyed a Day of Exercise and Fundraising for SMA Research
On Saturday, June 12th, the Illinois Chapter of FSMA had our 3rd Annual Walk-n-Roll.  The turn-out was amazing, with 15 SMA families attending the event with over 200 people registered to walk.  We had music, magic and a face painter to entertain the [...]

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10th Annual New England Chapter Cure SMA Walk-n-Roll Hits Fundraising Milestone, Raising Over $100,000 in Support of Families of SMA

Families from all over the New England area came Together once Again in Support of Finding a Treatment and a Cure for SMA
The 10th Annual New England Chapter Cure SMA Walk-n-Roll was held on Saturday, May 15.  “Team Murphy” in memory of Cianan and Cecilia, the Norton family’s “Goin for Owen” and the Farrell family’s [...]

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Durazzo Family Hosts Appetite for a Cure Fundraiser for FSMA

3rd Annual Fundraiser most Successful yet, Raising $3,000 for a Cure
April 5th would have been our daughter Aleah’s 3rd birthday. Every year since her passing I have tried to do some type of fundraising in her honor. When she first passed we sold bracelets, then on her first birthday (I was pregnant with twins and [...]

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3rd Annual Cure SMA Walk-n-Roll in Millburn, NJ Surpasses Fundraising Goals

Walk-n-Roll Held in Honor of Katherine Santiago
On Sunday May 16th, the 3rd annual Walk-n-Roll to Cure SMA in honor of Katherine Santiago was held in Millburn, New Jersey.  Friends, family, teachers and neighbors joined together on a sunny spring day to walk, raise money and reminisce about a little girl who had touched all of [...]

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Kentucky Members of the Families of SMA – OKI Chapter Host Max & Erma’s Fundraiser in Support of Spinal Muscular Atrophy

Local Fundraiser Brings Families Together in Support of FSMA
On Tuesday, May 18th, Max & Erma’s Restaurant at Hamburg Pavilion in Lexington, KY hosted a Families of SMA night. All diners had to do was give a coupon to their server and then 20% of their sale would go to FSMA. The grand total of sales [...]

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