6 Boston Marathon Runners Support Families of Spinal Muscular Atrophy
The New England chapter of FSMA was very fortunate this year. We had 5 terrific people running the Boston Marathon to help raise awareness and fundraise for FSMA. Together they raised about $25,500! Shown here is a picture of some of the New England Chapter kids [...]
Monthly Archives: April 2010
Boston Marathon Runners Bring in Over $35,000 for FSMA
Annual Johnson Family Yard Sale is a Huge Success for the Families of SMA – New England Chapter
Neighbors from all over Medfield, MA Join Forces to Support SMA Research in Hope for a Cure
Our 6th annual FSMA Yard Sale was a huge success raising $2,265 for the cause. The annual tradition has grown each year and the community continues to impress us with their incredible donations. We basically call to Medfield for [...]
Mother Runs on Anniversary of Sons Death to SMA
In Memory of her Son, a Mother Runs a Half Marathon
On August 16, 2009, Dorothy Shuler remembered the passing of her son Owen by running the San Diego Half Marathon in his honor. Her sister Maureen and her best friend Lauren (who has been Running for Owen since October 2008), joined her in support. To read more about why [...]
20-Year-Old Ponytail cut off in Support of FSMA
Raffle Held to decide which Employee would do the Honors
In an unusual fundraiser on December 30, 2009, the brokerage firm of Hennion & Walsh, Inc. located in Parsippany, New Jersey, raised $1,900 for the Families of SMA. Tickets were sold and a drawing was held to determine which employee would gain the privilege of cutting [...]
Cubist Pharmaceutical Employees Join Together to Raise Funds for SMA
Money Raised at Company Events in Honor of Employee’s Son
Kate Sohl, mother to Macarthur Sohl, sent in donations this past winter totaling $3,475. The money was raised from two different events held at her place of employment, Cubist Pharmaceuticals.
The first event was a bake sale and silent auction, which was hosted and led by individuals [...]
Shockley Family and the Families of SMA – Greater Florida Chapter Host 8 Ball Pool Tournament
Pool Tournament a Huge Success, Helping Raise Awareness for SMA, and Support for a Local Family
On April 3, STIX Billiards on St. Pete Beach hosted the Shockley Family & Families of SMA – Greater Florida 8 Ball Pool Tournament. Friends of the Shockley family planned to host a fundraiser to raise money for Maia Shockley’s [...]
Greater Florida Chapter Brings SMA Awareness to its Communities this Spring
Bike Night, featuring Harley Davidson attire, was a roaring success!
The Greater Florida Chapter of Families of SMA has been working to create fundraising events that not only raise funds for our organization, but also bring awareness to its communities.
On March 31, our chapter set up a vendor tent at the Quaker Steak N Lube Bike [...]
The Families of SMA – Rocky Mountain Chapter hosts their 9th Annual Evening of Hope Gala
Friends and Family from Across Colorado Joined Together to Help Raise Support and Awareness for Spinal Muscular Atrophy
The 9th Annual Evening of Hope Gala was held on Saturday, March 9, 2010 and raised over $33,000. This year we welcomed back Jim Benemann, CBS4 Anchor, as our Master of Ceremonies. Our guest speaker was Dave Avrin, [...]
Arnold Family Raises Annual Funds for FSMA with Family Golf Tournament
Another Year, Another Successful Tournament
In October, Kevin and Linda Arnold of South Charleston, West Virginia held their Annual Arnold Family Golf Tournament in honor of their son Eric Robert Arnold. The event came to be in October of 1996 as a birthday wish granted for Linda who was turning 40 that year and it has [...]
