The Rappoport Family has now raised more than three quarters of a million dollars for SMA research, and to support SMA families
The 7th Annual Walk by The Jacob Isaac Rappoport Foundation was held in a beautiful setting in South Florida. Over 450 families and friends turned out to support an amazing cause, and have fun [...]
Monthly Archives: March 2010
Jacob’s Run, Walk & Roll to Cure SMA 2010 a Spectacular Success
Brother Runs Annual Race for SMA in Memory of Sister
Birthday Race to Benefit Spinal Muscular Atrophy
Families of SMA would like to think Philip Meneghini and his family for their continued support of our mission to find a treatment and cure. Please read below about Philip’s way to raise money in memory of his sister, Victoria.
“My sister, Victoria, died from SMA. Since then I have run [...]
Carnival Held to Raise Funds for SMA
American Idol Contestant Supports Carnival
We have always had a passion to raise funds for FSMA to help our daughter Savanna, who was diagnosed at 8 months with SMA Type 1. We felt, as other families feel, completely overwhelmed. But, we also felt like we had to do something to feel like we were making a [...]
South Florida Chapter hosts Inaugural Walk-n-Roll to Support Families of SMA
A chilly morning didn’t stop participants to run and walk for SMA
On Sunday, February 28, 2010, the South Florida Chapter held their 1st Annual Families of SMA 5K Run, Walk ‘N Roll, dedicated to Daniel Cevallos who passed away this past year after losing his battle with SMA. The event was a great success raising [...]
NASCAR Driver Jimmie Johnson Supports Families of SMA
Jimmie Johnson Foundation honors former champion Benny Parsons
In late 2009 Families of SMA was chosen to be one of the 12 charities featured on famous NASCAR driver Jimmie Johnson’s racing helmet during the Pepsi 500 Sprint Cup race at Auto Club Speedway on October 11, 2009. More than 1,400 charities were submitted to the Foundation, and [...]
