Monthly Archives: February 2010

Arizona Chapter Raises $22,000 for Families of SMA

The 4th Annual Arizona Chapter Walk-n-Roll event hosts many new faces and lots of fun!
The Arizona Chapter held their 4th Annual Walk-n-Roll on November 22, 2009. We had beautiful weather and a great turnout for the event! 
There were several new families who attended the walk and were able to connect with other SMA families. Tim [...]

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Baby Zane Family Continues to Run for a Cure to SMA

Sweet Baby Zane and Families of SMA
We at Families of SMA would like to thank the Schmid family for their continued support to the Families of SMA motor-neuron replacement program. Your efforts are fantastic. Here is what Hillary Schmid had to say about the day
“Wonderful. Everything was wonderful; the weather, the crowd, and the event itself went very [...]

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South Florida Chapter of FSMA Holds Successful Dinner Night

Companies and Families Come Together to Support FSMA
What a great night! We raised $210 on the 15% sales and $600 on raffles and donations totaling $810! Maylin and Diane worked hard to sell the raffle tickets for all the wonderful items. Maylin received donated items from various places in the community including Monkey Joes, Learning [...]

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FSMA South Jersey/Delaware Chapter Students Unite to fight Spinal Muscular Atrophy

Students learn the value of hard work through lemonade stand business.
The first graders at Oldmans Township School are involved in a Social Studies Unit: Work! Work! Work! The students have been learning about needs, wants, goods, and services. The six and seven-year olds have set-up a class business, a lemonade stand.
The students had to vote [...]

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Kingkiner Family of New Jersey, First Annual Hoop, Walk-n-Roll is a Big Success!

Montgomery Township, NJ, declares September 26th as SMA Awareness Day.
Supporting Families of Spinal Muscular Atrophy (FSMA) has become a major focus for the Kingkiner family since 5th grader Griffen Kingkiner was diagnosed with SMA type 3 almost 2 years ago. With the help of family and friends, an event was sponsored to raise awareness and [...]

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Successful Walk-n-Roll Event Held by the Minnesota Chapter of FSMA

Money raised by 9th Annual Walk-n-Roll surpasses previous success.
On Sept 20th 2009 the Minnesota chapter of Families of Spinal Muscular Atrophy held our 9th Annual Walk-n-Roll event which, compared to the last year’s cold and pouring rain, was held on a perfectly beautiful day.
Despite these tough economic times, we were able to surpass last year’s [...]

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Michigan Chapter Holds Unique Events for FSMA

A hamburger dinner and family auction raise money for SMA.
The Michigan Chapter of FSMA held its 6th Annual Flippin’ for a Cure Hamburger Dinner on November 6, 2009 at the VFW hall in Portland. We had a great attendance for the fundraiser. We served 450 hamburger dinners and raffled off nearly 100 prizes. Everyone enjoyed [...]

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Rocky Mountain Chapter of Families of SMA Walk-n-Roll

Braving the cold to help find a cure.

On behalf of the Rocky Mountain Chapter – Families of Spinal Muscular Atrophy, I want to thank the many who donated and those who braved a cold morning on September 12, 2009, and participated in our 10th Annual Cure SMA 5K Walk-n-Roll & Run Across America ~ Colorado!
SMA [...]

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Sandra Ingram’s Memorial Raises Money for Families of SMA

A Mom loses battle to Cancer and gives to FSMA in honor of grandaughter.
With this letter I am sending donations that are for FSMA in honor of my mother Sandra Ingram. My mom passed away the day after Christmas after a very difficult battle with cancer. She was a strong supporter of FSMA because my daughter [...]

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Lukie Maida’s Fall Festival Offers Hope to Find a Cure for SMA

Lukie’s Festival – Our promise, his legacy.
It is with Great Joy as Always that we have enclosed the proceeds from our 6th Annual Lukie’s Fall Festival, $4,000. The day of Lukie’s Fall Festival this year was not the best weather. It was cold, windy and rainy. Despite this, as the day progressed, the warmth and [...]

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