Family and Friends Raise Over $2,900 in Memory of Alana Christine Whited
On September 24th, 2011 a gospel concert was held at Immanuel Baptist Church in Lebanon, Tennessee in memory of our little girl, Alana Christine Whited. We wanted to help spread the word about Spinal Muscular Atrophy to help others learn about this disease and the symptoms to look for in children living with SMA. Our goal was to raise money to help other families who are going through what we did with our little princess. It is not easy and every helping hand or voice makes a difference. We want to keep Alana’s spirit alive and let her know how much we love her by helping Families of SMA.
Alana touched a lot of people with her warm smiles even through her sickness. Several groups belonging to MSGMA (Mid-South Gospel Music Association) gave their talent and time and we truly appreciate all the hard work that everyone put in. During the concert, a slideshow was shown in memory of our daughter to show how much joy she brought to us in only a short six months. Along with this concert, we have placed donation boxes with Alana’s picture, information on SMA and the link to Families of SMA’s website in local business’s during the Christmas season. We also placed Alana’s Gift Registry page on our Facebook pages around the holidays and her birthday so that we could raise money for this cause. Through everyone’s kindness and generosity we raised $2,925 for Families of SMA! We hope to do many more benefits in honor of Alana and continue to spread the word about SMA in hopes to one day find a cure for this disease.
Sincerely,
The Whited Family
Thank you to the Whited Family for your hard work in planning the gospel concert which helped to raise awareness and funds for Families of SMA. Your dedication is inspiring hope that one day we will find a treatment and a cure for Spinal Muscular Atrophy.
To see more pictures from the gospel concert, please visit our Flickr page!
Repligen Team Generously Donates Holiday Gift
Repligen received a holiday card and check from the family of Hugo Cordova from Miami, Florida. The Cordova Family was appreciative of Repligen’s efforts in developing treatments for Spinal Muscular Atrophy as their son Gabriel has SMA. They wanted to have the Research and Development team be “rewarded” with a $500 [...]
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Over $2,000 Donated to FSMA for Critical Research and Family Support Programs
By the time our daughter, Ella, was diagnosed with SMA Type II Mama Bracelets had existed for almost one year. In that time we had raised money through bracelets and necklaces for several organizations including The Rett Research Trust, The American SIDS Institute, [...]
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Family and Friends Raise $2,175 in Honor of Kherington Shippee
Our now two year old daughter Kherington was diagnosed with SMA Type II last January. This summer many friends got together and held several benefits in her honor. The people who have shown support were named “Team Kherington.” I believe there were five benefits held by [...]
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Students and Staff Raise $10,000 in Honor of Aileen Farrell
On October 28, 2011, the students of St. Agatha School in Milton, Massachusetts held a walk to benefit Families of Spinal Muscular Atrophy. The students obtained pledges, then walked laps around the school for FSMA.
School staff member Michelle Tierney organized and coordinated the event that was [...]
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Family and Friends Raise $1,300 for Families of SMA
On December 17th we were having a small Christmas gathering at our home. The idea started out when our home was finished being decorated. The lights, the tree and the decorations both inside and out, were finally finished! Looking upon everything, we decided that it looked so [...]
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440 Donors Raise Over $36,000 in Memory of Skylar Bahrenburg
On Sunday, October 9, 2011, Team Reach for the Sky successfully completed the San Diego to Coronado Sharkfest swim! All team members made it safely to shore. And nary a shark was spotted in the process, although a few swimmers did report seeing a mean-looking halibut [...]
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Family and Friends Raise $9,000 in Memory of Grant
On Friday, September 2, 2011, the 7th Annual Grant Sheppard Memorial Scramble for SMA was held at Hickory Hills Country Club in Chilton, Wisconsin. The golf outing was held on what would have been Grant’s 7th birthday. We are proud to be sending you the proceeds that [...]
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50/50 Drawing Held to Benefit Families of SMA in Honor of Kennedy Montoya
Renee King, Grandmother to eight year old Kennedy Montoya, is the secretary of the Orange County Mustang Club in the County of Orange in California. The club has three car shows a year and there is always a 50/50 Drawing for SMA. Kennedy [...]
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FSMA Named as Annual Charity Sponsor
The United States Geological Survey Office in Baton Rouge, Louisiana has named Families of SMA as their annual charity sponsor! Over the next twelve months, all employees will have the opportunity of donating through payroll deduction and participating in weekly lunch fundraisers! Each Thursday, lunches will be sold [...]
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